Carolyn Wheatley - Chairman

Following initial years of illness prior to PN I know how it felt to be alone without appropriate support and treatment. Once I commenced PN I felt it only right to share some of my personal experiences with other people to eliminate those frequent moments of fear and panic.

Encouraging fellow patients to unite and be part of the 'patient forum' is rewarding while providing patients and carers an opportunity to educate everyone involved with caring for patients fed at home artificially ~ fundamentally if you haven't experienced it yourself you are not able to fully understand.

Justine Bayes - General Secretary

I started on home parenteral nutrition in December 2000 due to Crohn’s disease, and before this had a PEG. I became involved in PINNT after attending the PINNT Weekend held in July 2002, where, due to the friendliness of everyone there, I felt part of a family; a family that knew the all the ups-and-downs that artificial nutrition can bring, and that could offer practical help and support.

The PINNT ethos is very important to me: I do believe we all have something we can offer each other.

Jackie Huff

I decided to volunteer my time to PINNT as I can remember exactly how I felt, those many years ago, when I was told that I would need to go onto artificial feeding. Probably, like most of you, I thought that I was the only person in the world that was like this.

I have since found out that PINNT can offer me the same support, if not more, than I can give other people.

Dave Schneider

My twin sons were born prematurely and subsequently diagnosed with 'failure to thrive'. Feeding was a nightmare early on. Making contact with PINNT and talking to other parents provided some answers. Although there was the feeling of mutual respect between those parents and I, I considered them heroes as I do all of the PINNT patients, parents and carers.

Why do I offer my services as an executive committee member? Because I want to give something back to PINNT for helping me and I think it important to promote PINNT's message - that you're not alone and that patients can help professionals to help them.

Geoff Simmonett - Treasurer

My first introduction to PINNT was from my gastroenterologist when I went to see him to review the PEG he had recently fitted. I became a member and found the work that PINNT does in supporting and informing fellow Enteral and Parenteral nutrition users like myself was very rewarding. It has also given me the chance to use the knowledge I have gained about artificial nutrition to try to improve the quality of life for other users.

Karen Williams

I found out about the work of PINNT through my dietitian, and from the very first phone call I made to PINNT I have received invaluable advice and support. I'm now 3 1/2 years on from having my PEG-J fitted and am more confident about my condition and treatment. I joined the PINNT EC with the aim of helping PINNT raise it's profile among patients and medical professionals so that more patients can benefit from the sort of help I received.